Saturday, August 29, 2009

August 28, 2009

Johnny is in room 744 at Parkland Hospital in Dallas.

You finally got a room at around 1:30 in the morning. At 3:00 am, Mom called me upset...they still hadn't given you any meds so you haven't had a moments peace. Also, you haven't had anything going to your feeding tube since you left Manor care...that's too long for you to go without nourishment. I was really worried about Mom because she hadn't slept since Wednesday night and it's now Friday morning. She called me back at 3:30 am to tell me she was okay, that she just had a we all have! Mom was determined to stay and talk to the doctors. She finally spoke to someone who got you meds, food and set up some appointments for you. We think you will probably be at Parkland through the weekend. I'm not sure where you'll go from there, our hope is that you'll be able to get the pump and be weened off the trach but it's not looking like that will happen...not before you leave Parkland anyway. I visited you while the ENT doctor came to see you. She scheduled a CT scan of your neck and head. She thinks that you don't have an ear infection but rather a salivary gland's more in your jaw and your ears look fine. She ran a scope down your trach and down your nose and said everything looked good. You didn't even flinch when she put that thing in your was your left side...I wonder if you have any feeling on that side. Anyway, we won't get the results of the scans until tomorrow sometime. You were very peaceful when I left...they had just given you a muscle relaxer. Love you Johnny!!! Jen

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