We found out that in order for you to get an appointment with the doctor that installs the baclofen pump, you have to have a referral and a letter of medical necessity from your primary doctor. Mom called Dr. John, your primary doctor, and he said that he needed to see you...bummer! You had to travel over an hour there and over an hour back. If was very traumatic for you. Mom said that she had to hold your head because the head rest on your wheel chair doesn't secure your head. By the time you got back to Baylor, you were exhausted! We still haven't heard from insurance as to when you'll be moving. I say take your time insurance!
Love you Johnny!! xo Jen