Johnny,
We still haven't heard from the insurance company regarding surgery for Tuesday. The lady at the doctor's office that helps to set up these things took today off...How dare she have a life! Does she not understand what you've been through?
You didn't have a very good day today. You didn't feel like writing or talking. You complained about your left arm a lot. Mom put your splint cast on for an hour thinking you'd sleep with it on but you just picked at it and moaned. You would point at mom and then with your point finger, tell her to come to you. Then you'd point to the cast - you were telling her to take it off. You are clever!
Mom said you had apple sauce with blue berries - you liked it very much. You also worked on your vowels.
Jackie had a friend spend the night tonight. I'm sure it'll be a long night!
Love you!! XO Jen
Email from Valerie:
Hey Jenn! Will you please tell Johnny I said Hi! I've been sick with what seemed to be sinuses, then a cold...finally went to the doctor today after 4-6 weeks of this mess. I hope to be well next week to come see him. I love reading the updates and almost spit my coke out when I read the jellybean story...tooooooooooooooooooooo funny!!!
Tell Jackie Smack Hi
Saturday, November 14, 2009
Thursday, November 12, 2009
November 12, 2009
Johnny,
Cody and I came to see you this morning and when we walked in to your room we were greeted with a sign from Karen. She shared with us what you had for breakfast. They tinted your food green and when they suctioned you, there was no green!! Great job! When Cody and I came to your bed, the red cap from your trach was at your feet. Apparently you had a really productive cough and it flew right off. The nurse mentioned to mom that this could mean you are becoming closer to the point where you don't need the trach. I know that'll make you happy!
I don't know if anyone caught this in the previous paragrah, but they tinted your eggs green. Someone has a Dr. Seuss sense of humor!
Cody and I talked to you and wrote with you and worked on your computer with you...then we decided to take you for a walk around the grounds. We got you in the wheel chair and all situated and headed down the hall when we ran into your PT/OT, Beth and Allie. They were coming to do therapy. Since you were in your chair, you were able to go to the second floor therapy room where you stacked and unstacked cones, did some stretching and fished marbles out of putty and then put them back in. You did really good and seemed to enjoy it! I know you enjoyed being out of the bed for a while.
Stacking and unstacking cones:
Stretching with bands:
Removing marbles from putty:
Putting marbles back in putty:
When Cody and I got you back to your bed, you were wore out! We got you all comfy and you fell asleep. Cody and I had to leave but mom was on her way up there.
Mom said she gave you some bananas and you said more after each bite. I know your ready to eat, nearly 6 months on a feeding tube can't be fun! Mom said you also had some Dr. Pepper. I wonder how you'd do on mom's ice tea??? You remember how delicious it is, don't you? Isn't it funny how the most simple things taste better when mom makes them.
Mom said that she was across the room and you motioned for her to come here. She asked you what you needed and you pointed to the magazine she had layed there for you to look at, thinking you could scoot the pages over with the hand. You wanted mom to turn the pages for you. Such a brat!! You have no trouble getting what you want, huh?
Love you!! XO Jen
Cody and I came to see you this morning and when we walked in to your room we were greeted with a sign from Karen. She shared with us what you had for breakfast. They tinted your food green and when they suctioned you, there was no green!! Great job! When Cody and I came to your bed, the red cap from your trach was at your feet. Apparently you had a really productive cough and it flew right off. The nurse mentioned to mom that this could mean you are becoming closer to the point where you don't need the trach. I know that'll make you happy!
I don't know if anyone caught this in the previous paragrah, but they tinted your eggs green. Someone has a Dr. Seuss sense of humor!
Cody and I talked to you and wrote with you and worked on your computer with you...then we decided to take you for a walk around the grounds. We got you in the wheel chair and all situated and headed down the hall when we ran into your PT/OT, Beth and Allie. They were coming to do therapy. Since you were in your chair, you were able to go to the second floor therapy room where you stacked and unstacked cones, did some stretching and fished marbles out of putty and then put them back in. You did really good and seemed to enjoy it! I know you enjoyed being out of the bed for a while.
Stacking and unstacking cones:
Stretching with bands:
Removing marbles from putty:
Putting marbles back in putty:
When Cody and I got you back to your bed, you were wore out! We got you all comfy and you fell asleep. Cody and I had to leave but mom was on her way up there.
Mom said she gave you some bananas and you said more after each bite. I know your ready to eat, nearly 6 months on a feeding tube can't be fun! Mom said you also had some Dr. Pepper. I wonder how you'd do on mom's ice tea??? You remember how delicious it is, don't you? Isn't it funny how the most simple things taste better when mom makes them.
Mom said that she was across the room and you motioned for her to come here. She asked you what you needed and you pointed to the magazine she had layed there for you to look at, thinking you could scoot the pages over with the hand. You wanted mom to turn the pages for you. Such a brat!! You have no trouble getting what you want, huh?
Love you!! XO Jen
Wednesday, November 11, 2009
November 11, 2009
HAPPY BIRTHDAY GRANNY HOLUB!!!!
Thank you, thank you to all our veterans!! God bless you and your service!!!
Johnny,
Praying for you this morning as you travel to your appointment.
I heard back from Mom after your appointment. The doctor said that it was just a formality because you did so well with the trial. He said that depending on the insurance, you can have the surgery as early as Tuesday of next week. Great news!!
Now, we just have to pray that the insurance comes through with a quick approval.
When you got back from your appointment, your speech therapist gave you a fruit chew to try...you didn't like it. She also tried a cookie and you didn't care for it either. Mom said that she gave you a choice between Dr. Pepper and Coke and you chose coke this time.
It's great to see you progressing! Keep up the hard work!
Love you! xo Jen
Thank you, thank you to all our veterans!! God bless you and your service!!!
Johnny,
Praying for you this morning as you travel to your appointment.
I heard back from Mom after your appointment. The doctor said that it was just a formality because you did so well with the trial. He said that depending on the insurance, you can have the surgery as early as Tuesday of next week. Great news!!
Now, we just have to pray that the insurance comes through with a quick approval.
When you got back from your appointment, your speech therapist gave you a fruit chew to try...you didn't like it. She also tried a cookie and you didn't care for it either. Mom said that she gave you a choice between Dr. Pepper and Coke and you chose coke this time.
It's great to see you progressing! Keep up the hard work!
Love you! xo Jen
November 10, 2009
Johnny,
It was so good to spend time with you this morning. I gave you some lemon swabs and we worked on your swallowing some. You seem to enjoy the lemon swabs. I had a bit of an argument with the nurse because I told her I was going to take you outside for a little bit and she told me that in 30 minutes you'd be getting your meds. I said well, then he'll have 30 minutes to be out of this bed. I don't think I hid my feelings for her very well. I took you outside and you watched the little birds flying around, two squirrels playing chase and the leaves falling from the trees (which was very peaceful). When we got back to your room, it was time for your meds and breathing treatment and then Beth and Allie with PT & OT came to do your stretching. You were very cooperative but you kept your eyes closed the whole time. I got a call from Jackie's school that the water was out and they were having early release and I had to go pick her up. That cut our visit short. You were asleep when I left and mom was on her way up there so you weren't alone for very long.
Mom said that she gave you lemon pudding and after each bite you said "more". You ate the whole cup of pudding and enjoyed every minute of it!! Mom said that Karen, your speech therapist, is going to give you eggs in the morning. You also had Dr. Pepper today.
Mom bought you a type writer (it's one for kids but the keys are bigger then the lap top we tried last week). You spelled Johnny, mom and somewhere. Mom said that you didn't like it at first but then you started coming around.
Diana came to visit around 5pm so mom went on home.
You have an early appointment tomorrow. You need your rest : )
Love you! XO Jen
P.S. I remember when we were little, mom took us to the doctor to get our shots. It was your turn and you were terrified. You got on the floor and crawled under the chairs and you were holding on to the legs screaming "help me", "help me". Mom was mortified! The nurse was not amused! I, however, still think it's funny!
Email from Leroy:
Hi Jennifer,
I just wanted to drop you a line and tell you and your family that I am thinking of all of you and that I love you guys very much. Tell your Mom and Johnny that i said hello and give them my love.
Love Leroy
It was so good to spend time with you this morning. I gave you some lemon swabs and we worked on your swallowing some. You seem to enjoy the lemon swabs. I had a bit of an argument with the nurse because I told her I was going to take you outside for a little bit and she told me that in 30 minutes you'd be getting your meds. I said well, then he'll have 30 minutes to be out of this bed. I don't think I hid my feelings for her very well. I took you outside and you watched the little birds flying around, two squirrels playing chase and the leaves falling from the trees (which was very peaceful). When we got back to your room, it was time for your meds and breathing treatment and then Beth and Allie with PT & OT came to do your stretching. You were very cooperative but you kept your eyes closed the whole time. I got a call from Jackie's school that the water was out and they were having early release and I had to go pick her up. That cut our visit short. You were asleep when I left and mom was on her way up there so you weren't alone for very long.
Mom said that she gave you lemon pudding and after each bite you said "more". You ate the whole cup of pudding and enjoyed every minute of it!! Mom said that Karen, your speech therapist, is going to give you eggs in the morning. You also had Dr. Pepper today.
Mom bought you a type writer (it's one for kids but the keys are bigger then the lap top we tried last week). You spelled Johnny, mom and somewhere. Mom said that you didn't like it at first but then you started coming around.
Diana came to visit around 5pm so mom went on home.
You have an early appointment tomorrow. You need your rest : )
Love you! XO Jen
P.S. I remember when we were little, mom took us to the doctor to get our shots. It was your turn and you were terrified. You got on the floor and crawled under the chairs and you were holding on to the legs screaming "help me", "help me". Mom was mortified! The nurse was not amused! I, however, still think it's funny!
Email from Leroy:
Hi Jennifer,
I just wanted to drop you a line and tell you and your family that I am thinking of all of you and that I love you guys very much. Tell your Mom and Johnny that i said hello and give them my love.
Love Leroy
Tuesday, November 10, 2009
Prayer Request
Please pray for my brother, Johnny Holub, Wednesday morning 11/11 at 8:30 am. He has a consultation appointment with the doctor that will be performing the surgery for the Baclofen pump. We feel like this appointment is just protocol because he's already had the trial and it was successful. What we are wanting prayer for specifically is a slot to open up for Johnny to receive the pump as soon as possible. He has started to lose the progress he gained while in Baylor Rehab...meaning, he's becoming stiff in his arms and legs. He only has so many days that insurance will allow him to be in rehab and the most benefit will be achieved after he receives the pump. That's why he's at Traymore right now. But, as soon as he receives the pump he will be sent back to Baylor Rehab.
God has blessed us in so many ways through out Johnny's recovery and we praise Him for His many blessings!!! Thank you in advance for lifting up my brother! Jennifer Smith
Matthew 7:7-8
Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened.
God has blessed us in so many ways through out Johnny's recovery and we praise Him for His many blessings!!! Thank you in advance for lifting up my brother! Jennifer Smith
Matthew 7:7-8
Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened.
Monday, November 9, 2009
November 9, 2009
Johnny,
Mom came to visit while you were having your physical therapy. Your PT and OT therapist were stretching you out. Mom commented that your not acting like your tooth is bothering you at all. That is such a relief! She said that she put your splint cast on for an hour and you pinched and complained the whole time. I wish you could be completely pain free ... I know you must be very tired of this by now!
I'm planning on spending the day with you tomorrow as soon as I take Cooper to school.
Love you!! Xo Jen
Mom came to visit while you were having your physical therapy. Your PT and OT therapist were stretching you out. Mom commented that your not acting like your tooth is bothering you at all. That is such a relief! She said that she put your splint cast on for an hour and you pinched and complained the whole time. I wish you could be completely pain free ... I know you must be very tired of this by now!
I'm planning on spending the day with you tomorrow as soon as I take Cooper to school.
Love you!! Xo Jen
November 8, 2009
Johnny,
Mickey and I came to visit right after church. You were sound asleep when we got there and it was nice to see you so peaceful! You soon woke up and we realized that your shirt was completely wet so we changed your sheet and pillow cases and got you all situated. Then I rinsed out your mouth where your tooth was pulled and gave you some lemon swabs. I suctioned you after that. I asked you if you wanted to write and you indicated that you did. You were tired, so your writing wasn't very legible.
Mom, Robert and Jackie came in a few hours later. Mom gave you some Dr. Pepper with a spoon and you had about a 1/4 of a can. You did really well, when she suctioned you, you had no DP in your lungs!! Your beginning to strengthen your swallowing muscles!! That's wonderful...as soon as you can eat and swallow with no problems, they'll feel like it's time to remove the trach. I know that will be great for you!
These are pictures of mom giving you Dr. Pepper. After she gives you a spoonful, she puts her finger on your throat just above your Adam's apple to make sure that you swallow before she gives you another spoonful. You are doing really well!!
Mom asked you what was hurting you and you spelled on the board, "me arm". You got some meds and the nurse changed out your feeding tube and then you were sleepy. It was so nice to see you sleeping without hearing you moan...I guess having the tooth pulled was the right decision!
Mom said that before she left she was having you write and you spelled "I need some help" She said what do you need help with Johnny? And you said Reading. Then you were done. You didn't want to write anymore. Mom said she gave you the magnetic letters and asked you do you want to spell some more words? And you put and "I" down. Then a "D", then an "o", then a "U", then a "T". You lined them all up, turning the "U" upside down. Your answer to the question mom asked...Do you want to spell some more words was "I dont". Ha! Ha! I just laughed when she told me that! How clever you are!!
We think that you were needing help with your reading because your left eye is beginning to open and the opthomologist said that when this happens, you could possibly have double vision. You will have to start wearing a pirate patch if it continues to bother you.
Love you! Xo Jen
Mickey and I came to visit right after church. You were sound asleep when we got there and it was nice to see you so peaceful! You soon woke up and we realized that your shirt was completely wet so we changed your sheet and pillow cases and got you all situated. Then I rinsed out your mouth where your tooth was pulled and gave you some lemon swabs. I suctioned you after that. I asked you if you wanted to write and you indicated that you did. You were tired, so your writing wasn't very legible.
Mom, Robert and Jackie came in a few hours later. Mom gave you some Dr. Pepper with a spoon and you had about a 1/4 of a can. You did really well, when she suctioned you, you had no DP in your lungs!! Your beginning to strengthen your swallowing muscles!! That's wonderful...as soon as you can eat and swallow with no problems, they'll feel like it's time to remove the trach. I know that will be great for you!
These are pictures of mom giving you Dr. Pepper. After she gives you a spoonful, she puts her finger on your throat just above your Adam's apple to make sure that you swallow before she gives you another spoonful. You are doing really well!!
Mom asked you what was hurting you and you spelled on the board, "me arm". You got some meds and the nurse changed out your feeding tube and then you were sleepy. It was so nice to see you sleeping without hearing you moan...I guess having the tooth pulled was the right decision!
Mom said that before she left she was having you write and you spelled "I need some help" She said what do you need help with Johnny? And you said Reading. Then you were done. You didn't want to write anymore. Mom said she gave you the magnetic letters and asked you do you want to spell some more words? And you put and "I" down. Then a "D", then an "o", then a "U", then a "T". You lined them all up, turning the "U" upside down. Your answer to the question mom asked...Do you want to spell some more words was "I dont". Ha! Ha! I just laughed when she told me that! How clever you are!!
We think that you were needing help with your reading because your left eye is beginning to open and the opthomologist said that when this happens, you could possibly have double vision. You will have to start wearing a pirate patch if it continues to bother you.
Love you! Xo Jen
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