Johnny,
HAPPY BIRTHDAY TO YOU
HAPPY BIRTHDAY TO YOU
HAPPY BIRTHDAY DEAR JOHNNY
HAPPY BIRTHDAY TO YOU!!!
You had a great birthday week and you took advantage of your birthDAY ... by napping all day!!
Happy 39th Birthday Johnny!!
Love you!! XO Jen
Monday, July 5, 2010
Year 1 Week 4 : July 6 - 12
Johnny,
I found this poem in your computer ... it's dated 2008, and for you to save it means it was important to you. I thought it was really good so I thought I would share it. Wish I knew where you got it and what you were going through at the time.
LETTING GO
To let go isn’t to forget, not think about, or ignore.
It doesn’t leave feelings of anger, jealousy, or regret.
Letting go isn’t winning and it isn’t losing.
It’s not about pride and it’s not about how you appear.
And its not obsessing or dwelling on the past.
Letting go isn’t blocking memories or thinking sad thoughts,
And doesn’t leave emptiness, hurt or sadness.
It’s not giving in or giving up
Letting go isn’t about loss, and it’s not defeat
Letting go is to cherish memories, but to overcome and to move on.
It is having an open mind and confidence in the future.
Letting go is accepting. It is learning and experiencing and growing
To let go is to be thankful for the experiences that made you laugh,
Made you cry and made you grow.
It’s about all that you have, all that you had and all that you will soon again
Letting go is having courage to accept change, and the strength to keep moving.
Letting go is growing up
It is realizing that the heart can sometimes be the most potent remedy
To let go is to open a door, and to clear a path and set yourself free.
Love you Johnny!! XO Jen
I found this poem in your computer ... it's dated 2008, and for you to save it means it was important to you. I thought it was really good so I thought I would share it. Wish I knew where you got it and what you were going through at the time.
LETTING GO
To let go isn’t to forget, not think about, or ignore.
It doesn’t leave feelings of anger, jealousy, or regret.
Letting go isn’t winning and it isn’t losing.
It’s not about pride and it’s not about how you appear.
And its not obsessing or dwelling on the past.
Letting go isn’t blocking memories or thinking sad thoughts,
And doesn’t leave emptiness, hurt or sadness.
It’s not giving in or giving up
Letting go isn’t about loss, and it’s not defeat
Letting go is to cherish memories, but to overcome and to move on.
It is having an open mind and confidence in the future.
Letting go is accepting. It is learning and experiencing and growing
To let go is to be thankful for the experiences that made you laugh,
Made you cry and made you grow.
It’s about all that you have, all that you had and all that you will soon again
Letting go is having courage to accept change, and the strength to keep moving.
Letting go is growing up
It is realizing that the heart can sometimes be the most potent remedy
To let go is to open a door, and to clear a path and set yourself free.
Love you Johnny!! XO Jen
Year 1 Week 3 : June 29 - July 5
Johnny,
The Lord has blessed our family today (June 29th)...Ty Allen Smith was born today at 12:32pm. Ty weighed 6 lbs 13 oz and 19 1/4 in long. He is absolutely perfect!
Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows. James 1:17
Praise God for the gift of Ty!!! I look forward to you getting to know your nephew Johnny.
Jennifer Smith ... before having Ty
Jennifer & Johnny before Ty was born
Mom & Jennifer before Ty was born
Jackie's "Ty's Cousin" T-shirt
Jennifer & Jackie before Ty was born
Johnny showing off his "Ty's Uncle" T-shirt
Mickey & Dr. Morehead before Ty was born
Mickey cutting Ty's umbilical cord
Ty getting checked out by his nurse
Ty Allen Smith
Jennifer meeting Ty for the first time
Jennifer after Ty was born
Cody meeting his little brother for the first time
Dad & Diana meeting Ty
Johnny meeting Ty for the first time
Mom, Cody and Johnny checking out Ty
Jackie & Ty
Johnny holding Ty
Ty Allen Smith
Ty getting his hearing test ... he passed with a perfect score
Ty napping
Ty going to his first doctor appointment ... he could care less
Jackie holding Ty
Ty sleeping in his nap nanny
Johnny looking at Ty
Johnny kissing Ty
Johnny kissing Ty
Love you Johnny!! XO Jen
The Lord has blessed our family today (June 29th)...Ty Allen Smith was born today at 12:32pm. Ty weighed 6 lbs 13 oz and 19 1/4 in long. He is absolutely perfect!
Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows. James 1:17
Praise God for the gift of Ty!!! I look forward to you getting to know your nephew Johnny.
Jennifer Smith ... before having Ty
Jennifer & Johnny before Ty was born
Mom & Jennifer before Ty was born
Jackie's "Ty's Cousin" T-shirt
Jennifer & Jackie before Ty was born
Johnny showing off his "Ty's Uncle" T-shirt
Mickey & Dr. Morehead before Ty was born
Mickey cutting Ty's umbilical cord
Ty getting checked out by his nurse
Ty Allen Smith
Jennifer meeting Ty for the first time
Jennifer after Ty was born
Cody meeting his little brother for the first time
Dad & Diana meeting Ty
Johnny meeting Ty for the first time
Mom, Cody and Johnny checking out Ty
Jackie & Ty
Johnny holding Ty
Ty Allen Smith
Ty getting his hearing test ... he passed with a perfect score
Ty napping
Ty going to his first doctor appointment ... he could care less
Jackie holding Ty
Ty sleeping in his nap nanny
Johnny looking at Ty
Johnny kissing Ty
Johnny kissing Ty
Love you Johnny!! XO Jen
Year 1 Week 2 : June 22 - 28
Johnny,
6/23/10
You did really well feeding yourself today. You even made the chewing motion.
You spent 20 minutes today on the bike.
At 4pm today you spelled BED with your magnetic letters. Yesterday at this same time you wrote “take me somewhere where I can sleep”.
6/24/10
The Dynasplint lady came today; she will follow up with insurance to see about getting you ankle splints. Not sure about arms yet. Mom was working on the computer and gave you a pen, you wrote very clearly, “it’s time” … complete with the apostrophe. Mom asked you, time for what? She couldn’t read what you tried to tell her so she got the magnetic letters. You spelled, “to go home”. Then you wrote “theropy”. Mom said, yes you have to finish therapy. You wrote “kinda sucks”. Mom said, are you telling me therapy kinda sucks? And you said, “yes”. Then you wrote, “if it’s gonna work then we need to watch and not let the others turn us, we can do this”. What a great attitude!!
6/25/10
You went to Dr. Thomas’s office to have your Baclofen pump refilled, he refilled it 10%. You are now up to 598 ml. Your next appointment will be the end of August.
After appointment, you went to lunch with some of mom’s friends from her old work, you went to Mother Fuddruckers . Then you went to a thrift shop and then the Farmers Market. Afterwards, you, mom and Jackie meet me in Uptown Village in Cedar Hill. It was so good to see you. I think you were happy to see me too because you kept reaching out to touch my hand. My friend Jennifer Kids was with me and she told me later how great you looked and how aware you seemed. You were happy to see Cooper too. He said, Hi Johnny and you raised your hand to wave and then you reached for him. It was so good to see you!! After our visit, you headed home.
Jackie went out to gather the eggs and found a chicken snake in the chicken pen. Robert killed it.
6/26/10
Robert and mom put you in your standing frame for 40 minutes today. You said your knee was hurting. Mom had you type on the kids computer – you really typed well on it. You asked when you could go home. Mom told you you needed to stay here and have therapy. You asked “how many people will it take for therapy.” Then you typed “I’m going to get my knee fixed”.
6/28/10
Today you, mom and Jackie met Mickey and I at my doctor’s appointment. I had a sonogram scheduled and I had been talking to mom on the phone that morning and mentioned I had to get ready for the appointment. I thought you had therapy so I didn’t ask mom if y’all wanted to go but she said she wanted to and hopped in the van quick and fortunately was about to get to the appointment on time because the sono tech was running late. You really seemed to enjoy seeing your nephew on the screen and you seemed to know what was going on. After my sono appointment I had an appointment to see my doctor so you, mom and Jackie waited on Mickey and I so we could go to lunch afterwards. While in my appointment, my blood pressure was really high and I was swollen in my legs so my doctor told me that I was going to have a baby tomorrow (6/29). I started crying. My doctor said, last week you cried because I told you I wasn't going to take the baby…this week I tell you I am and you cry … what’s that about? Of course, I cried some more. I’m just so excited to meet Ty and a little scared about the surgery. What started out a lazy Monday quickly turned into a busy Monday. Mom got on the phone really quick to cancel your therapy for Tuesday so you could be at the birth.
So exciting Johnny … you get to meet your nephew tomorrow!!
Love you Johnny!! Xo Jen
6/23/10
You did really well feeding yourself today. You even made the chewing motion.
You spent 20 minutes today on the bike.
At 4pm today you spelled BED with your magnetic letters. Yesterday at this same time you wrote “take me somewhere where I can sleep”.
6/24/10
The Dynasplint lady came today; she will follow up with insurance to see about getting you ankle splints. Not sure about arms yet. Mom was working on the computer and gave you a pen, you wrote very clearly, “it’s time” … complete with the apostrophe. Mom asked you, time for what? She couldn’t read what you tried to tell her so she got the magnetic letters. You spelled, “to go home”. Then you wrote “theropy”. Mom said, yes you have to finish therapy. You wrote “kinda sucks”. Mom said, are you telling me therapy kinda sucks? And you said, “yes”. Then you wrote, “if it’s gonna work then we need to watch and not let the others turn us, we can do this”. What a great attitude!!
6/25/10
You went to Dr. Thomas’s office to have your Baclofen pump refilled, he refilled it 10%. You are now up to 598 ml. Your next appointment will be the end of August.
After appointment, you went to lunch with some of mom’s friends from her old work, you went to Mother Fuddruckers . Then you went to a thrift shop and then the Farmers Market. Afterwards, you, mom and Jackie meet me in Uptown Village in Cedar Hill. It was so good to see you. I think you were happy to see me too because you kept reaching out to touch my hand. My friend Jennifer Kids was with me and she told me later how great you looked and how aware you seemed. You were happy to see Cooper too. He said, Hi Johnny and you raised your hand to wave and then you reached for him. It was so good to see you!! After our visit, you headed home.
Jackie went out to gather the eggs and found a chicken snake in the chicken pen. Robert killed it.
6/26/10
Robert and mom put you in your standing frame for 40 minutes today. You said your knee was hurting. Mom had you type on the kids computer – you really typed well on it. You asked when you could go home. Mom told you you needed to stay here and have therapy. You asked “how many people will it take for therapy.” Then you typed “I’m going to get my knee fixed”.
6/28/10
Today you, mom and Jackie met Mickey and I at my doctor’s appointment. I had a sonogram scheduled and I had been talking to mom on the phone that morning and mentioned I had to get ready for the appointment. I thought you had therapy so I didn’t ask mom if y’all wanted to go but she said she wanted to and hopped in the van quick and fortunately was about to get to the appointment on time because the sono tech was running late. You really seemed to enjoy seeing your nephew on the screen and you seemed to know what was going on. After my sono appointment I had an appointment to see my doctor so you, mom and Jackie waited on Mickey and I so we could go to lunch afterwards. While in my appointment, my blood pressure was really high and I was swollen in my legs so my doctor told me that I was going to have a baby tomorrow (6/29). I started crying. My doctor said, last week you cried because I told you I wasn't going to take the baby…this week I tell you I am and you cry … what’s that about? Of course, I cried some more. I’m just so excited to meet Ty and a little scared about the surgery. What started out a lazy Monday quickly turned into a busy Monday. Mom got on the phone really quick to cancel your therapy for Tuesday so you could be at the birth.
So exciting Johnny … you get to meet your nephew tomorrow!!
Love you Johnny!! Xo Jen
Tuesday, June 22, 2010
Year 1 Week 1 : June 17 - June 22
Johnny,
You are becoming quite the little terd! Mom said that she went to give you your meds tonight (17th) and you waved both hands in the air trying to slap her hands. You managed to spill the meds. Mom had taken the left cast off your hand and hadn't put it back on. She told you to quit hitting but you kept on so she tied your right arm to the bed with a pillow case while she gave you your meds. You were smiling while you were hitting at her. She told you it was not funny but apparently you thought it was. Caution: Watch for the right hook when you least expect it!!
Dad came by this afternoon (22nd) and set with you for a couple of hours. Y'all watched Madagascar. Mom had been working outside while April and Lisa were here doing your therapy...she got so hot she jumped in the pool and stayed there a while. Maybe soon you'll be able to take a dip too. Your suppose to have a test done to see if you can finally have the trache removed. I know that will be a huge step forward!!
Mom said after Dad left she took you into the living room and You, mom and Jackie watched a movie. You started touching your mouth and tensing up. Mom couldn't tell what was wrong so she got you the Dynavox. You typed "Take me somewhere where I can sleep". So, Mom put you to bed. It still amazes me how well you communicate your needs.
It's been a week since I saw you last...Driving out to where you are is getting painful. Seems like Mickey hits every bump along the way. We got to where I would drive but I'm having so many random contractions that it makes it really hard! I have two weeks and 1 day until Ty's scheduled C-section...July 7th. I can not wait for you to meet him.
Jackie helping you with the standing frame.
Sunday afternoon Mom, Jackie, Sandra and you went to the Hillsboro Outlet Mall and shopped for a few hours. Mom said you really seemed to enjoy your time out. This is a picture of you getting ready to load up and go.
Playing thumb war with Jackie
Jackie made dessert from a recipe in a magazine - by herself ... she's growing up!
Love you Johnny!! XO Jen
II Corinthians 12:9
My grace is sufficient for thee: for my strength is made perfect in weakness.
Isn't that comforting! Have a great week little brother!! Love you : )
You are becoming quite the little terd! Mom said that she went to give you your meds tonight (17th) and you waved both hands in the air trying to slap her hands. You managed to spill the meds. Mom had taken the left cast off your hand and hadn't put it back on. She told you to quit hitting but you kept on so she tied your right arm to the bed with a pillow case while she gave you your meds. You were smiling while you were hitting at her. She told you it was not funny but apparently you thought it was. Caution: Watch for the right hook when you least expect it!!
Dad came by this afternoon (22nd) and set with you for a couple of hours. Y'all watched Madagascar. Mom had been working outside while April and Lisa were here doing your therapy...she got so hot she jumped in the pool and stayed there a while. Maybe soon you'll be able to take a dip too. Your suppose to have a test done to see if you can finally have the trache removed. I know that will be a huge step forward!!
Mom said after Dad left she took you into the living room and You, mom and Jackie watched a movie. You started touching your mouth and tensing up. Mom couldn't tell what was wrong so she got you the Dynavox. You typed "Take me somewhere where I can sleep". So, Mom put you to bed. It still amazes me how well you communicate your needs.
It's been a week since I saw you last...Driving out to where you are is getting painful. Seems like Mickey hits every bump along the way. We got to where I would drive but I'm having so many random contractions that it makes it really hard! I have two weeks and 1 day until Ty's scheduled C-section...July 7th. I can not wait for you to meet him.
Jackie helping you with the standing frame.
Sunday afternoon Mom, Jackie, Sandra and you went to the Hillsboro Outlet Mall and shopped for a few hours. Mom said you really seemed to enjoy your time out. This is a picture of you getting ready to load up and go.
Playing thumb war with Jackie
Jackie made dessert from a recipe in a magazine - by herself ... she's growing up!
Love you Johnny!! XO Jen
II Corinthians 12:9
My grace is sufficient for thee: for my strength is made perfect in weakness.
Isn't that comforting! Have a great week little brother!! Love you : )
Wednesday, June 9, 2010
Week 52 : June 8 - June 14, 15 & 16
Johnny,
What a difference a year makes!! Today has been a year since your accident. I am so thankful that you are still with us although the journey for you has been hard! You have really made some great strides this week and had a set back or two but that's been true for this whole year! There was a point this year when Mom said that if all you were ever able to do was tell you daughter you love her, that would be enough and you do that ... and so much more! Your family is so proud of you and love you so much!!
I've included a few pictures from a year ago so we can remember how far you've come. This picture is of you and Jackie at Select Specialty. You were still in a coma and it was still very much touch and go. At one point during your stay at this hospital, the doctor told Mom that it was inhuman for her to leave you hooked up to your feeding tube. He suggested that we turn it off and let you pass. Oh Lord! That was not the right thing to say to our mother! You were not in that hospital for too much longer. Mom can not wait for the day that you walk into that doctors office and say what a mistake you suggested!
Your still in a coma but we were told that you could hear the music so mom would play your favorite songs for you through out the day.
Johnny and Mom at Select Specialty. That woman barely left your bedside! She was and continues to be dedicated to your care. You are so blessed!
Jackie and Jennifer praying for you. It was so hard seeing you like that! I remember the first time I saw you open your eyes just a sliver. I thought for sure you were waking up from your coma. I yelled for the nurse and she came in and said, oh, that's great progress ... I was a little disappointed! I wanted you to wake up now! At this point, we still didn't know the extent of your injuries to your brain.
Fast forward to the present:
You were typing on your dynavox this morning (6/8/10) while waiting for your physical therapist to arrive. You typed out "take me home". Mom explained to you that you had an accident and where you were, etc. Then you typed "I'm ready". Mom told you that you needed more therapy before you could live in your own house. You typed "when can I". Mom took you outside for a while and y'all watched Jackie swim. Mom asked you if you were hot and if you wanted to go in the house. You said something that sounded like "home" and pointed towards where you had lived. Mom was so heartbroken but she knows that it is yet another step in your recovery process. Now we're going to have to be careful because as you become more able to more you will begin to try to get out of bed and go home. Later that afternoon, mom asked you to tell her what you wantedand you immediately spelled "outside" so she took you out for a while. You chose to watch Jackie in the pool again.
Mom walked into your room this evening (6/8/10) and you had sweat on your forehead. Your AC was set on 73 and the temperature gauge showed 75.2. Mom asked you if you were cold. You raised up in the bed and said a string of words that she couldn't understand. Mom got the magnetic letters and you immediately spelled "I'm freezing" At least one thing about you hasn't changed...you are always cold. You seem to want so much to talk.
6/9/10
This morning Mom put the dynavox on keyboard and you spelled "I'm ready for this to end". We know this is a stage you have to go through but it is still upsetting! Tonight when Dad and Diana came over you pointed to your chest and then pointed to Diana and then towards the window. Mom thought you were saying you wanted to go outside with Diana. She got the magnetic letters and you wrote "lets go outside". After 10 minutes outside you were cold and wanted to go back to bed. You are so smart! When Mom got home from church, Jackie went into see you and told you to give her a kiss. You did. Then she told you she loved you and gave you the sign for I love you. You pointed to yourself, made the I love you sign and then pointed at her. How amazing! That's what we said all along...that would be good enough... but now we want the whole Johnny package back!
6/10/10
This morning you typed "I'm ry to end". When mom asked you what you were ready to end you typed "all of this". I know it's hard Johnny and I know your tired but, you have no choice...you have to beat this! We love you!!
Jackie is reading you a book. You seemed to enjoy it.
6/11/10
Mom and Robert ran some errands and while they were gone, Dad visited you.
At some point you wrote with your magnetic letters “my right toes”. When mom got home, she put you in bed and took off your shoes…then saw what you wrote. Whatever the problem was with your toes must have been worked out with the removal of the shoes. I love how you communicate now! Speaking of communicating, you typed out tonight: “I need to pee”, “how do I pee”, “I swear this is a joke”…mom asked you what was a joke and you typed “everything” and “when can I go home”. Mom took pictures of what you typed and then asked you whose camera she was using. You pointed to mom. Mom said, no, it’s your camera. You asked her “where did I buy camera”. Mom asked you some specific questions you could answer yes or no to, we are trying to determine what year your mentally in. She asked you who your best friend in school was...was it Bob? You said no. Was it Mike? You said no. Was it Donny? You said yes. That's correct. Mom asked you if you have a daughter and you said yes. She asked if you were ever married and you said no. She asked if you knew someone named Ashlee and you said yes. She asked did she have a daughter and you said yes. She said was Ashlee married and you said no. She asked if you were ever divorced and you said no. She asked if Ashlee had more than one child and you said yes. (You and Ashlee were married and divorced and Ashlee does have a daughter but no other children, so you got that partly right) She asked if you knew Adena and you said yes. She asked if Adena had a daughter and you said yes. She asked if Adena was married and you said no. She asked if Adena had any other children and you said no. (Adena was a friend from high school. She is married and has 4 children, so you got this one partly right too). She asked if your friends had been visiting you and you said no. (They have been visiting) She said, do you know Buddy and you said yes. She said, has Buddy been coming to visit you and you said no. She told you that in fact Buddy had been coming to see you since he found out about your accident. You didn’t remember that. She asked if you remembered your passwords to email or facebook and you said no. I'm sure all the questions are frustrating for you. It's a big help to know what you remember though. For anyone who reads this, I don't post this to hurt feelings...I look forward to the day when I can post and say Johnny remembers EVERYTHING!!
When can I go home?
I swear its a joke (everything)
How do I pee?
my right toes
You are asking Jackie if she had a good time at church.
Jackie is feeding you while you are spelling.
I picked you up a surprise when I went shopping...a head massager...Your enjoying it.
Your holding your head massager and laughing about something I said. We decided to call your head massager BOB so if you want someone to use it on you all you have to do is spell Bob.
6/14/10
After two days of constant pain, your waiting for Dr. Thomas to make it all better. Dr. Thomas increased the Baclofen pump by 15%. It is now at 543.7. Originally they told us it would need to be at 600 to 700 to get the full effect. They also prescribed you some liquid baclofen so you could get some immediate relief if this happened again. Seems your brain is starting to register pain and you have pain from arthritis caused by previous injuries. You seem pretty comfortable now.
After your pain management appointment, you had a dentist appointment. The dentist fixed some of your teeth that were damaged and you did really well. After the appoinment, mom and Robert drove you home but first they went through a state park.
Mom was thinking it might be a nice place to picnic until she saw a sign that there were alligators in the park. Ha! She changed her mind pretty quick.
This is a picture of the sunflowers outside you window. They came up from the seeds that fell from your birdfeeder.
6/16/10
Well, today is officially 1 year since...Your work is not over. April came and casted your right hand and your fingers are nearly straight. The left hand is a little behind, it's stiff from not being casted for a while so maybe next time you can have a straighter cast. We need to get your hands all fixed up so you can hold your nephew if he ever comes : )
Johnny, we are so proud of you. Keep up the great work!!
Love you!! Xo Jen
What a difference a year makes!! Today has been a year since your accident. I am so thankful that you are still with us although the journey for you has been hard! You have really made some great strides this week and had a set back or two but that's been true for this whole year! There was a point this year when Mom said that if all you were ever able to do was tell you daughter you love her, that would be enough and you do that ... and so much more! Your family is so proud of you and love you so much!!
I've included a few pictures from a year ago so we can remember how far you've come. This picture is of you and Jackie at Select Specialty. You were still in a coma and it was still very much touch and go. At one point during your stay at this hospital, the doctor told Mom that it was inhuman for her to leave you hooked up to your feeding tube. He suggested that we turn it off and let you pass. Oh Lord! That was not the right thing to say to our mother! You were not in that hospital for too much longer. Mom can not wait for the day that you walk into that doctors office and say what a mistake you suggested!
Your still in a coma but we were told that you could hear the music so mom would play your favorite songs for you through out the day.
Johnny and Mom at Select Specialty. That woman barely left your bedside! She was and continues to be dedicated to your care. You are so blessed!
Jackie and Jennifer praying for you. It was so hard seeing you like that! I remember the first time I saw you open your eyes just a sliver. I thought for sure you were waking up from your coma. I yelled for the nurse and she came in and said, oh, that's great progress ... I was a little disappointed! I wanted you to wake up now! At this point, we still didn't know the extent of your injuries to your brain.
Fast forward to the present:
You were typing on your dynavox this morning (6/8/10) while waiting for your physical therapist to arrive. You typed out "take me home". Mom explained to you that you had an accident and where you were, etc. Then you typed "I'm ready". Mom told you that you needed more therapy before you could live in your own house. You typed "when can I". Mom took you outside for a while and y'all watched Jackie swim. Mom asked you if you were hot and if you wanted to go in the house. You said something that sounded like "home" and pointed towards where you had lived. Mom was so heartbroken but she knows that it is yet another step in your recovery process. Now we're going to have to be careful because as you become more able to more you will begin to try to get out of bed and go home. Later that afternoon, mom asked you to tell her what you wantedand you immediately spelled "outside" so she took you out for a while. You chose to watch Jackie in the pool again.
Mom walked into your room this evening (6/8/10) and you had sweat on your forehead. Your AC was set on 73 and the temperature gauge showed 75.2. Mom asked you if you were cold. You raised up in the bed and said a string of words that she couldn't understand. Mom got the magnetic letters and you immediately spelled "I'm freezing" At least one thing about you hasn't changed...you are always cold. You seem to want so much to talk.
6/9/10
This morning Mom put the dynavox on keyboard and you spelled "I'm ready for this to end". We know this is a stage you have to go through but it is still upsetting! Tonight when Dad and Diana came over you pointed to your chest and then pointed to Diana and then towards the window. Mom thought you were saying you wanted to go outside with Diana. She got the magnetic letters and you wrote "lets go outside". After 10 minutes outside you were cold and wanted to go back to bed. You are so smart! When Mom got home from church, Jackie went into see you and told you to give her a kiss. You did. Then she told you she loved you and gave you the sign for I love you. You pointed to yourself, made the I love you sign and then pointed at her. How amazing! That's what we said all along...that would be good enough... but now we want the whole Johnny package back!
6/10/10
This morning you typed "I'm ry to end". When mom asked you what you were ready to end you typed "all of this". I know it's hard Johnny and I know your tired but, you have no choice...you have to beat this! We love you!!
Jackie is reading you a book. You seemed to enjoy it.
6/11/10
Mom and Robert ran some errands and while they were gone, Dad visited you.
At some point you wrote with your magnetic letters “my right toes”. When mom got home, she put you in bed and took off your shoes…then saw what you wrote. Whatever the problem was with your toes must have been worked out with the removal of the shoes. I love how you communicate now! Speaking of communicating, you typed out tonight: “I need to pee”, “how do I pee”, “I swear this is a joke”…mom asked you what was a joke and you typed “everything” and “when can I go home”. Mom took pictures of what you typed and then asked you whose camera she was using. You pointed to mom. Mom said, no, it’s your camera. You asked her “where did I buy camera”. Mom asked you some specific questions you could answer yes or no to, we are trying to determine what year your mentally in. She asked you who your best friend in school was...was it Bob? You said no. Was it Mike? You said no. Was it Donny? You said yes. That's correct. Mom asked you if you have a daughter and you said yes. She asked if you were ever married and you said no. She asked if you knew someone named Ashlee and you said yes. She asked did she have a daughter and you said yes. She said was Ashlee married and you said no. She asked if you were ever divorced and you said no. She asked if Ashlee had more than one child and you said yes. (You and Ashlee were married and divorced and Ashlee does have a daughter but no other children, so you got that partly right) She asked if you knew Adena and you said yes. She asked if Adena had a daughter and you said yes. She asked if Adena was married and you said no. She asked if Adena had any other children and you said no. (Adena was a friend from high school. She is married and has 4 children, so you got this one partly right too). She asked if your friends had been visiting you and you said no. (They have been visiting) She said, do you know Buddy and you said yes. She said, has Buddy been coming to visit you and you said no. She told you that in fact Buddy had been coming to see you since he found out about your accident. You didn’t remember that. She asked if you remembered your passwords to email or facebook and you said no. I'm sure all the questions are frustrating for you. It's a big help to know what you remember though. For anyone who reads this, I don't post this to hurt feelings...I look forward to the day when I can post and say Johnny remembers EVERYTHING!!
When can I go home?
I swear its a joke (everything)
How do I pee?
my right toes
You are asking Jackie if she had a good time at church.
Jackie is feeding you while you are spelling.
I picked you up a surprise when I went shopping...a head massager...Your enjoying it.
Your holding your head massager and laughing about something I said. We decided to call your head massager BOB so if you want someone to use it on you all you have to do is spell Bob.
6/14/10
After two days of constant pain, your waiting for Dr. Thomas to make it all better. Dr. Thomas increased the Baclofen pump by 15%. It is now at 543.7. Originally they told us it would need to be at 600 to 700 to get the full effect. They also prescribed you some liquid baclofen so you could get some immediate relief if this happened again. Seems your brain is starting to register pain and you have pain from arthritis caused by previous injuries. You seem pretty comfortable now.
After your pain management appointment, you had a dentist appointment. The dentist fixed some of your teeth that were damaged and you did really well. After the appoinment, mom and Robert drove you home but first they went through a state park.
Mom was thinking it might be a nice place to picnic until she saw a sign that there were alligators in the park. Ha! She changed her mind pretty quick.
This is a picture of the sunflowers outside you window. They came up from the seeds that fell from your birdfeeder.
6/16/10
Well, today is officially 1 year since...Your work is not over. April came and casted your right hand and your fingers are nearly straight. The left hand is a little behind, it's stiff from not being casted for a while so maybe next time you can have a straighter cast. We need to get your hands all fixed up so you can hold your nephew if he ever comes : )
Johnny, we are so proud of you. Keep up the great work!!
Love you!! Xo Jen
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