September 27, 2009

Psalm 46:1
God is our refuge and strength, a very present help in trouble.

Psalm 139:4
I will praise thee; for I am fearfully and wonderfully made: marvelous are thy works; and that my soul knoweth right well.

Proverbs 3:5-7
Trust in the Lord with all thine heart; and lean not unto thine own understanding. In all thine ways acknowledge him, and he shall direct thy paths. Be not wise in thine own eyes, fear the Lord, and depart from evil.

Johnny,

Mom asked you last night if you were in pain and you raised a finger to indicate no. I have been worried that maybe you were in pain and we just didn't know it. I'm so thankful that your not and I'm thankful that you were able to find a way to tell us that your not. You are making such miraculous progress - it truly is a miracle. In the beginning days, they (the dr's) weren't giving us much hope that you would survive this. I can remember mom and I sitting in the floor in the hallway of the SICU, waiting to get 15 more minutes to see you. We were crying, praying, begging ... that God would take over. We were also realizing that there might be some really hard decisions to make. We thought we knew what you might want but of course, you can never know for sure. Thankfully, that never came to be a decision we would have to make. You have come so far since that day Johnny! Your progress in therapy is wonderful and it's just amazing to hear your voice. I can't wait to see what you do next. You have always been one to march to the beat of your own drum...that hasn't changed! Ha!

Psalm 9:10
And those who know thy name will put their trust in thee; for thou, O Lord, has not forsaken those who seek thee.

Mickey and I stopped by after church today. You were in and out of sleep at first. I gave you some sucker and you woke up a little. I brushed your teeth. Mickey and I straightened you up in the bed and you played ball with Mickey. While you were playing ball with Mickey, I was praising you and telling you what a good job you were doing. I said Johnny, give me a high five and I put my hand up. You dropped the ball, and put your hand up to mine. Now, what is so amazing is that you not only knew how to high five but you knew what high five was. It makes me wonder what else is locked in your brain that we just haven't asked you yet to retrieve. You just amaze me everyday! Mickey and I both just gasped and we were like, did he really do that....we had you do it again and you did. We were both telling you woo hoo, good job! I asked you to give me a thumbs up after that and you did. A few more throws of the ball and you were done. Buddy and Tammy came in to see you and you weren't all that active, I think Mickey and I wore you out. You threw the ball with Buddy a little. Then, Mom and Robert came in. Then Dad. We all stood around your bed trying to get you to do one thing or another. By the time we all left, you were exhausted and sound asleep. Mom and Robert stayed for a while longer. Before Mickey and I left, I told you that I was going to leave and was there anything you wanted me to tell Jackie. I said, raise two fingers if you want me to tell her something. You didn't raise your fingers. I said, Johnny raise two fingers if you want me to tell Jackie hi. You raised your fingers. I said, Johnny raise two fingers if you want me to tell Jackie you love her. You raised your fingers. I said, Johnny raise two fingers if you know who Jackie is. You didn't raise you fingers. Then I said, Johnny raise two fingers if you know that Jackie is your daughter. You raised your fingers! It's just amazing to be able to communicate with you. Love you!! xo Jen

You high-fiving me : )